Showing posts with label Duck. Show all posts
Showing posts with label Duck. Show all posts

Sunday, March 20, 2011

on sweet potatoes......

First, to the mommy that commented back in January I apologize for not getting back here sooner about Duck's sweet potato allergy. The first time he had sweet potatoes, Sam had a single streak across his face. A few days later we tried them again and he was head to toe with hives, his face swollen. It was the only new food he'd had all week and the only other foods he was eating were Nutramigen (hypoallergenic formula) and rice cereal.

Three years ago, we were in a buffet-style restaurant and picked up what had been labeled "pumpkin pie" for Sam and it turned out to be sweet potato pie. Thankfully we were around the corner from our apartment because by the time we'd gotten home, he had small hives on his stomach.

Sweet potatoes are not a common allergy, but it does exist.

Thursday, October 8, 2009

Sam's annual IEP

They started with the OT, and when she said that it was group setting, I kind of stopped the whole IEP. I started by saying to the teacher that I had challenges and that if we needed to talk after the meeting, that was fine. They let me go on. I let them know I wasn't all that happy with the program and that while I didn't want to be the pain in the butt parent, I felt that his services were being reduced even though he'd been making great progress. that the more progress he made, the less he was getting. Granted, that's what we want, but it seems that the older he is, the less services he's receiving one-on-one. And in order for him to continue on the same pace, he needs the same level, not less.

I told them that in the last 18 months he's gone from daily one-on-one services to none. That I understood we went from a phenomenal EI program supported by Arnold Palmer Hospital (Orlando's big children's hospital) and a school district with multiple elementary schools to a district with only three elementaries and one pre-k special ed program. This program is our only option right now unless I look at school of choice and make my own transportation arrangements. (which is something I may look into depending on the job hunt....if it meant a better program, I'd work 2nd or 3rd shift)

ANYWAY........
They responded by telling me that with a small class (8 kids) and already two adults, the kids are getting 1:4 help. When the OT is there, she has an intern, making it 1:2. They also sometimes have half the kids at gym, making it 1:1. I felt MUCH better after this.

Then they said they wanted to change his diagnosis classification. No one felt, after having spent 5 weeks with Sam and looking at his scores from May 08, that he needed the "developmentally delayed" label. They have now placed him solely in the "speech and language impaired" program.

This made my heart very happy that we could get rid of the PDD label for now, but sad because it was really something Eric needed to hear.

They all agreed that Sam's main problem is (and always has been) his expressive communication, but there is a receptive communication problem. Knew this, but okay.

The teacher said that she feels Sam needs visual cues for listening. Almost like he's still trying to learn to read facial cues. I said it could be that he had to read faces to listen before getting tubes that it's almost like a crutch for him. She said he sometimes doesn't respond when she talks to him if he's facing away from her. We agreed that some of that was probably selective, but that the majority of it was that he just really needs to face you to hear and understand what's being said.

I had every intention of asking for him to be retested since it's been 2.5 years and he's an entirely different kid. But they brought it up first saying they would redo it in the spring if I felt that we needed to.

We talked about kindergarten readiness for next year. And that's where I feel more of my frustrations came out. His program last year was ALL about getting every kid in the class ready for kindergarten, with or without services. They did a lot of academics, he was doing the Letter People, cutting/gluing/coloring/writing, even some math. The teacher admitted their program is basically a preschool for special needs kids. It's the only program in the district and right now Sam is one of the higher functioning kids, whereas last year he was middle ground.

The speech therapist gave me a few more ideas of how to get Sam's face muscles working harder. She also gave me an explanation of why my kid thinks he needs to shovel food in. With the low muscle tone, he's not feeling the stretch in his cheeks until it's bordering on way too much in his mouth. She said to use the electric toothbrush on the insides of his cheeks to get them stimulated.

Eric and I are fine with him going to kindergarten next year (w/ or w/o services) and repeating the following year. He turns 5 in July, so while he'll be ahead of the deadline (Dec. 1 in MI), but that doesn't mean he'd be totally ready. I told the teacher today, I'd be fine with him doing two years in her class then kindergarten in 2011 at age 6.

I signed my papers, happily that I got my frustrations out and that they understood where I was coming from.

Thursday, October 30, 2008

Please help us meet our base goal!

Duck and I are walking in the Walk Now for Autism Orlando walk on November 15. We did this last year and while I will be nearly 6 months pregnant, we're doing it again.

The minimum donation for a t-shirt is $100. Duck has $25 raised so far. I originally set a high goal, but right now I just want to see my Duck get a shirt for his participation.

This is our design, from my friend Heidi:


Please? Without Autism awareness, I really feel that Duck would have fallen through the cracks as just another boy who talked late. We know that's not the case, there's so much more than just a speech delay. But not enough to qualify under PDD-NOS right now. Duck continues to make strides every single day with the help he gets in school. Again, without Autism awareness, this is something we would not have.

To donate, please visit Duck's team member page (click here).

This is such a worth cause and fully tax deductible.

Saturday, October 4, 2008

Duck and playdough

Duck loves playdough....but it's only been recent that he actually does something other than squish it. He finally got the toys figured out and I owe it all to SCHOOL.

Saturday, September 27, 2008

lack of udpates

Sorry.....it's been pretty crazy around here. Recently made the decision to drive home in a few weeks. I have a job where if you don't use your vacay, you lose it. But, being 18 week pg, I had to make a decision fast or I'd be taking a vacay in my apartment. So, against the better judgment of other people, we are driving the 1200 miles from Orlando to Detroit in a couple of weeks. Yep, at 20 weeks pg and with a potty-training 3yo, we're going to drive straight up I-75. Much better and more cost effective than shelling out $1000 tickets and luggage, plus trying to find transporation to and from the airport. Not to mention lugging Duck's car seat through the airport (we have a cool thing, but you have to disassemble it on the plane). Just easier to drive than fly when you have a toddler/pre-schooler.

But seriously, I would rather drive. That's the way I grew up. Driving and staying either with family or in a pop-up camper. When I was an exchange student in 88, it was my first flight every. At age 14, to a foreign country without my parents.

E and I drove down here in April 04, we drove back home for Christmas 06 and now we'll do it again in 08. (I also did it for NYE 99/00, but that was BE.......Before E.) So, I don't think much of an 18-hour drive. And adding Duck into the mix isn't that bad. As long as we have a full charged dvd player, his Franklin, Diego and Curious George dvds, some Nutripals bars and some Chobby......we're all set. Might look for a new toy the night before we leave though.

Plus? Plus after all the media some of these families with special needs families are getting? I don't need that kind of crap happening with Duck. He'll be much happier in his own seat for 1200 miles, getting to run around every few hours. As I'm sure so would every other Orlando to Detroit passenger be than if we flew. He's just at that age where not getting what he wants entitles him to a full blown meltdown. I hate dealing with them, I won't purposely subject someone else to them, nor would I put my child in a situation where he might have one.

Anyway, things have been crazy.

FIL is here right now. YAY. Love it when he's here. 'Course he brought presents for Duck. Really cool building blocks, an alphabet puzzle and a bowling game. And we've got a PERFECT hallway for the bowling.

Tomorrow? Tomorrow I'm making a pot roast. Last night I had a steak for dinner. I know you're probably all picking your jaws up from the floor. I'm not a big beef eater.

Seriously, I grew up with home-grilled steak every other week. Complete with buttered mushrooms. So, it's not like I wasn't exposed. I just never developed a strong desire to eat it. My mom makes the BEST pot roast in the world. I could eat it any time. But, I live 1200 miles from her. And, really, I don't like to cook big meals for just me and E. Otherwise, I seriously don't eat a lot of red meat. (tacos and spaghetti don't count and we really don't have hamburgers that often.) I'm a chicken or tuna kind of girl. And since E's learned how to successfully grill a salmon steak, we have that about once a month. (he gets fish and I don't have a fishy-smelling apartment)

BUT.......a few weeks ago, I drove by a Texas Roadhouse. And, OHMYGOD, the smell coming from that place was enough to drive me crazy. So, FIL took us there last night and I actually ordered an 8oz sirloin. I seriously was in heaven. I didn't finish it all, but it was enough to curb the craving for a while. But, on my way home, had to go to Super Target to pick up new photos of Duck and found a perfectly perfect pot roast and grabbed some carrots and red potatoes too.

YUM Can't wait to cook that tomorrow.

Then tomorrow night? I'm making chili. Just because I want to have it on hand.

Tuesday, August 19, 2008

Lessons learned

I think as a mom, one of the most important (and likely valuable) lessons I've learned from my mom is the ability to multi-task. I say this because oddly, whenever I bring cookies in to work, someone always asks how I find time.

I don't know, I just do.

I can bake cookies (double batch btw), clean up the kitchen (to include rearranging pantry), sort laundry, entertain a 3 year old and sort laundryall in about 3 hours of time. Granted, probably only 2 of those at one time, but my 3 year old can follow directions and help me change loads.

(Thank God he knows what "in" means)

I don't remember specifically being taught to multi-task and while women are more natural at it than men, I definitely know women who don't do so well. But I just remember watching my mom do it all. Three kids, husband and a job.....all of which had its own set of issues and challenges. Of course, they all had rewards too. But my mom was an inspiration for me...if she could do it all, so could I.

Admittedly, I have my faults with multi-tasking. I tend to take on too much, not say no and after about 3-5 months of that, I break. Yep, I break. Usually ends with a trip to the doctor's because I'm so run down and two or more days off from work.

But, once I'm better? It's off to anxiety-ridden multi-tasking again. I like it, though. I feel useful. Sitting on the couch, relaxing? I don't feel so useful.....well, that is unless I'm being used as a pillow by Duck. Then I feel extremely useful and grateful. I love cuddling with my baby boy.

I rarely sit down though. Again, I don't think I saw my mom sit much unless it was after dinner and the house was once again spotless (and yeah, I mean spotless....we used to say that Buckingham Palace couldn't match my mom's cleanliness)

I know, I know. Twelve weeks pregnant with a history of a subchorionic bleed, I need to take it easy. How?

I don't know the meaning of taking it easy. I like a clean house (contrary to what my mom or dad might tell you), but I think I'm the only one in my home that does, so that makes it hard. Obviously, Duck doesn't care. He wants toys, food, juice and his mama. E? Well, he's an entirely different story. But, I take great satisfaction in a clean house. I also HATE HATE HATE ants. Oddly, I can deal with cockroaches, spiders and even the occasional snake or gecko in the apartment. But I hate ants. (and yes, right now I have an infestation thanks to my wonderful (cough cough) neighbors and their a/c unit. Btw, baby powder, is a GREAT way to rid yourself of ants and have a baby fresh smell in your home.

I did spend 3 hours cleaning my kitchen top to bottom before making cookies on Sunday. My counters are completely clear for the first time since we moved in 4 months ago. My dining room table is used EVERY.SINGLE.NIGHT for dinner. I can probably count on one hand the number of times we ate at the table in the previous four years. (thank you MIL for the furniture, it's helped our family have family time)

Anyway, time to go multi-task again. Have to get Duck up from his nap, get him a snack, make some meatloaf and repackage beef and chicken for the freezer.

Monday, May 19, 2008

Aidan designing our shirt?

Interesting suggestion....will have to take that up with his mom. He's an incredibly talented artist, loves dinosaurs, the planets and Buzz Lightyear and Woody. (though I think those last two might have changed recently.)

Among other things.............Daytona was a blast this weekend. No major incidents and well, my little Duck proved his nickname once again. Remember way back when that I told you he has webbed toes thanks to Nana? (See Here I Am for a photo) Well, this weekend, my little Duck put his face fully in the water and started kicking to swim. Course at one point, he moved into a dolphin kick (kind of like trying to do the butterfly).




Duck also got enema #3 this weekend (the others were in July and September last year.) I hate those things. But, there was no way that kid was going on his own. So, we're back to packing lunch for the sitter's. I think he's so sensitive to binding foods. But my good fortune is that he likes Flat Outs which are a GREAT source of fiber and he likes fruit. At least I have my jabbering Duck back and he's eating again.

Thursday, May 8, 2008

<~~~~~VOTE!!!!!

Vote for a team name, or leave a comment with a suggestion on this post. Be clever, be thoughtful......


Would like to include "cousins" or "duck and Aidan" in some way. We're doing the walk in honor of my nephew Aidan (and all our other friends out there with Autism diagnoses).

Monday, March 31, 2008

Duck's Progress

Duck is 32 months old and here are his current stats:
26 pounds
~36" tall
wearing 2T or 3T shirts and 24 month shorts
~7.5 in shoes

Duck's current word lists. The letters in parentheses are not vocalized. For example, yuck is just "yuh" TOTAL: 34

VERBAL
Mama
Dada
No
Yeah
Na-nigh (night night)
You (with and without pointing at you)
Eat (in conjunction with sign)
Joos (juice)
Yu(ck)
S(h)oes
Do-go (Go Diego Go)
Oh-dah (Dora)
Cheese
(P)izza
Oh no
Eye (sounds more like "ah")
Mou(th)
Nose
Ball (for anything round, including a tomato)
(Ba)nana ---God forbid I walk by the bananas at Publix or Walmart and not buy 2 or 3
Ah Deedee (I did it)
SSSShhhhh (rare, but it's complete with finger at mouth)

SIGN LANGUAGE
Open
Again
Cookie
Milk
All done
Hi/Bye
Thank you
Eat
More
Please
Down
Go-go-go
working on Cheese

I would say it's pretty even on what's prompted and what's done on his own and appropriately.

He can identify his eyes, nose, mouth, hands and feet. He touches his head for hair or head, but won't say either word. He will open his mouth and say "ah" for the doctor when asked, as long as it's Dr. C.

He can almost get his shirt off by himself and does a pretty good job of pulling up his pants. Potty training will HAVE to wait at this time. And I think we're finally over the whole constipation thing. As long as pear juice and graham crackers are part of the daily diet, we're good.

He understands go to the table, get in your chair, and it's dinner time. We've had to go back to gating him out of the kitchen due to him getting into Friday night's dessert, so while he does understand it's milk time, he can't go to the kitchen to help get it.

He likes helping in the kitchen though. A few weeks ago, I let him help stir the cake mix. Tonight I did a hand-over-hand and we shredded cheese together for tacos.

And, mostly, he's the most affectionate little boy right now. It's like the floodgates opened up. He walks right over to me, wraps his legs around me and says, "mama."